Family of a baby boy given three months to live are desperately waiting to see if the NHS will pay for the drug that could save his life
Image by: Matthew Newby SWNS
The family of a baby boy given three months to live are desperately waiting to see if the NHS will pay for the drug that could save his life.
Six-month-old Haris Khan was born with a rare and debilitating genetic disorder, Spinal Muscular Atrophy (SMA), also known as floppy baby syndrome.
When his family were given the devastating diagnosis this month they were also delivered the mortifying blow that the drug that could give him a better, longer life had been pulled in November last year.
Now, Haris' dad, salesman Shakeel, is joining a protest next month - along with other SMA families - to fight for the £450,000-a-year drug, Spinraza.
Image by: Matthew Newby SWNS
They will be gathering outside the NICE offices in Manchester next Tuesday ahead of a crucial meeting to come to an agreement over funding.
In the meantime, adorable Haris, from Wythenshawe, Greater Manchester, is in intensive care at the Royal Manchester Children's Hospital attached to an apparatus that helps him breathe.
His family of 31-year-old dad, mum, shop assistant Renata, 26, and nine-year-old brother Marijus, are staying at a local hotel so they can be at Haris' bedside 24/7.
They fear each moment could be his last.
On February 14, specialist doctors told the family Haris has the severest form of the illness, type 1, which affects the nerve cells needed to control the muscles we use for moving, swallowing and breathing.
The irony is, that if Haris had been diagnosed sooner - he was born in August last year - he would have already been given the drug, as it available on a pre-approval basis.
Image by: Matthew Newby SWNS
The first British girl to receive it, Annabelle Rose Thomas, has come off breathing support, can swallow food and has even ridden a horse.
But last summer, the National Institute for Health and Care Excellence (NICE) said it was not recommending Spinraza be available on the NHS in England because the cost was deemed 'too high for it to be considered a cost-effective use of NHS resources'.
It remains available in Scotland and several other European countries.
Biogen, the company which makes the drug, charges almost £600,000 for it in the US market.
It is offering Spinraza at a lower price of £450,000 for the first year in the UK, and offered an undisclosed discount to the NHS, but it was still not enough.
Shakeel said: "Only a hundred babies a year maximum need that treatment. We, as a country, are losing a hundred babies because we don't think it's justified to save them.
"These organisations are using my son as a bartering tool. The best I can do is to save my son, or keep him with us for as long as possible.
"I'm just beginning my journey in parenthood - I want him here as long as he can be.
"There is a one in four chance my next child will have this - we can't have any more children."
Image by: Matthew Newby SWNS
Amazingley, the Wythenshawe community had shown tremendous support for the Khan family.
Every neighbour on their street has a poster in the window about SMA.
Marijus' school and the Rainbow Trust Children's Charity are helping the family any way they can.
Whatever the outcome for Haris and the decision on March 6, Shakeel and Renata don't want other families to go through the same ordeal.
"We might only have my Haris for a few months, so I've got to create a legacy for him," said Shakeel.
"The NHS don't screen for SMA at birth.
"Had they screened him in August when he was born, the treatment was available until November on the Early Access Programme.
"Eighty infants are on that - Haris would have been 81.
"That's one thing we're calling for."
Haris is the youngest child with SMA to feature on a leaflet being handed out to all MPs this week by the charity Muscular Dystrophy UK.
Image by: Matthew Newby SWNS
Shakeel wants as many people as possible to be aware of the fight and support the cause.
"Every SMA parent is waking up thinking 'is this our child's last day?' he said.
A spokesperson for NHS England said: "We understand how difficult and frustrating it is for families waiting for decisions to be taken on the funding of new treatments, which is why the company must price this drug responsibly and at a level which is both cost effective and affordable to the NHS.
"It is disappointing that Biogen chose to close the Early Access Programme for new patients with Spinal Muscular Atrophy Type 1 before the NICE assessment process had been completed."
A JustGiving page has been set up to raise money to support the Khan family's campaign to improve awareness of SMA. It is also where Shakeel is posting updates on Haris and his battle. You can visit and donate here: https://www.justgiving.com/crowdfunding/littleharis?utm_id=69
Video by: Matthew Newby SWNS
Moment quick-thinking police call handler saves mute man's life by interpreting his frantic tapping down the phone
Video by: Ellis Wylam
This is the incredible moment a mute man who called 999 was able to communicate with the emergency operator - using a series of TAPPING noises.
The 63-year-old became poorly at home and his call for help went through to police when he didn't speak.
Thankfully call handler Kathryn Longstaff realised something was wrong and quickly realised the man was communicating with her via tapping.
The pair communicated by her asking him questions - and he tapped for yes, adding a number of taps in quick succession to indicate a more urgent answer.
The man - who usually communicates using a whiteboard - was rushed to hospital and later used the board to thank Kathryn for saving her life.
In an audio recording of the call, the Cleveland Police call handler can he heard asking him if he needs an ambulance, if he has problem breathing and if his door is open.
The only way the man from Cleveland, was able to answer was by hitting something to make a noise, during the call on February 16.
Image by: Matthew Newby SWNS
Kathryn said: “As soon as I picked up the call, I knew something wasn’t right and I had to think quickly of a way to communicate with him as I didn’t know at that point what sort of danger he was in.
“Thankfully he had contacted police before and his number and address were already on our system.
"This allowed me to ask him to confirm his personal details by tapping.
"I then asked if he was in danger and if he needed an ambulance.
“I even asked him if he could manage to open the door to allow medical services to access his house, which he was able to do.
“As soon as I knew that he was in danger, my colleague dispatched officers to his address who also alerted the Medicar to attend as quickly as possible.
"Once it arrived, the man was rushed to James Cook University Hospital.
“The man could only use a whiteboard to communicate with staff and he wrote on it to thank all the staff for saving his life, which was extremely moving."
Head of force control room Superintendent Emily Harrison said Kathryn was "an absolute credit to the force".
She added: "Without her quick-thinking the man might not be alive today."
Astonishing moment free runners ride on top of a TRAIN in London for a stunt
This is the astonishing moment two adrenaline junkies rode on the top of a moving London TRAIN.
The daredevils can be seen running towards a Docklands Light Railway station before racing up to the platform and jumping on the outside of the final carriage.
A video shows the masked pair then hoisting themselves to the top of the driverless train and "surfing" it out of West Silvertown Station in London.
Go-Pro footage shows the men leaping between the carriages, and bracing themselves against the wind on top of the train which can reach speeds of 50mph.
As it pulls into the next station - understood to be Canning Town - the two men race to the end of the train before leaping onto the platform and racing out the exit.
One of the men, who would not be named, said the stunt took place last week.
The 21-year-old said: “It was just fun.
“The ride between stations was probably about two minutes but it felt like an eternity.
“When we arrived at the next stop people were shouting for us to ‘get down’ which is understandable as for a normal person this is unimaginable.
“Most of them say that we have a death wish.
“I don’t regret doing it.
“It’s all about your attitude and how you time it.
"We knew we could never do it on the underground so this was the next best thing.
“We couldn’t during rush hour and if we left it too late it would have been kids coming back from school."
A spokesman for the British Transport Police has been contacted for comment.
Catholic school pupils were hospitalised after "more than 100" suffered burned foreheads while taking part in an Ash Wednesday assembly
Image by: Steve Chatterley
Parents at a catholic school say "more than 100" kids suffered burns while having ash crosses smudged onto their foreheads during an Ash Wednesday assembly.
At least two children from St Augustine’s Catholic High School were taken to hospital following the religious event.
Parents said the ritual was performed by a priest and two older children and was stopped half way through when kids complained of "tingling".
One concerned grandparent said more than 100 kids were burned - and parents are considering legal action against the school in Redditch, Worcestershire.
A parent who took her son to hospital for treatment said medics told her it was a chemical burn that would likely leave a scar.
Traditionally the ash for the ceremony comes from leaves burned in last year's Palm Sunday services.
But a grandparent said "toxic" ones had been used this time.
Mum Cassena Brown, 39, said her son Chairo Rowe, 14, was badly burned in the ceremony, had to be taken to hospital and has been off school for two days.
She said: "I am absolutely furious.
"They started with the year nine and it was the priest and two sixth form children - a boy and a girl.
"That's the first thing that confused me when I heard about it. Why are children doing it to other children?
"After a while some of the children said that it had started to burn. Some of the teachers said it did as well.
"Some of them rubbed it off straight away, but some left it on.
"The children who left it on complained it was burning and some were given a wet wipe to wipe it off.
"But when some of the kids wiped it off, it ripped the skin off as well.
"It was red raw. They should have been sent to a medical professional, not given a perfumed wet wipe."
Delivery driver Cassena said all parents were sent a text message saying some children had been left with an "irritation" after the Ash Wednesday assembly.
She said the message said the parents of the most severely affected children would get a call - which Cassena did - and she came to pick up her son early.
"I saw other children walking out with their parents, with red marks - like a heat rash almost - on their foreheads," she said.
"But when I saw my son I was gobsmacked.
"My son was the worst of everyone. Because he is of Afro-Caribbean heritage you can see the burn very clearly, as the skin is burned and it's white underneath."
She said doctors at Alexandra Hospital said it was a chemical burn and recommended keeping the wound clean with cold water.
"It continued to burn throughout the night," she said.
"It was red hot. He won't go to school.
"He's embarrassed. Last week he had girls at school saying he was cute, now he has a burn on his face."
A grandfather of another burned child, who did not want to be named, said "over 100 children were damaged".
He added: "They are anointed with a cross on the forehead.
"The medium used was a mixture of palm oil and ash from burned leaves.
"They must have picked a toxic leaf as the results in most cases were burns on the forehead resulting in hospital admissions for many children.
"The parents are contemplating legal action."
The Christian Ash Wednesday ritual involves receiving a mark of ashes on the forehead as a token of penitence and mortality.
Parents at the school gates today (Fri) said some burned children were sent home.
One dad, who has a daughter at the school, said: “I think it was basically the first year students in school who were affected.
“It’s terrible really."
A mum said: "A load of the kids had to go home after they got burned."
Another mum added: "My daughter said something had happened and some kids got burned on the forehead.
“We are not Catholic so my daughter would not have taken part."
St Augustine’s Catholic High School said the ash was provided by a priest from the Diocese of Birmingham, which sourced it from a company in Aldridge.
Head of school Gerald O'Connor said he didn't know how many children were affected - but it was less than the estimate of "more than 100" given by parents.
He said he didn't know how many children were taken to hospital, but said some teachers were burned too.
A spokesperson for the school said: "During the Ash Wednesday service, it came to our attention that some discomfort was experienced by students that had received the ashes on the forehead.
"As a result all students were requested to wash the ashes off immediately to ensure no further discomfort was felt.
"We are aware that some students had a reaction to the ashes from the parish, for which medical advice has been sought.
"Parents are being kept informed and the school will carry out a full investigation as to why the ashes may have caused this reaction on this occasion."
Mr O'Connor added: "There were a number [of students] that we advised to seek medical attention. We've asked parents to keep us informed as to whether they did or not.
"We dealt with the issue immediately. Obviously health and safety is our primary concern.
"Some teachers were affected. We advised them to seek medical attention as well.
"We source our ashes from an external provider. We know there are processes to follow, and that is under investigation. We have asked for that investigation to happen. We want to get to the bottom of it."
Giant lizard which was banned from a park is now allowed to enter on condition his owner keeps him on a lead
Video by: Ashley Moran
A dad-of-one has been ordered to keep his huge pet lizard on a LEAD while walking it in a park – after it scared other dogs.
Gary Smith, 54, was originally banned from taking his black-throated monitor called Thor out for a stroll after a string of complaints.
Dozens of dog owners and park users said they were worried the three-stone 5ft-long critter would attack their pets or even injure children.
But town hall chiefs agreed to lift the ban if Gary agreed to keep Thor on a lead while in Markeaton Park, Derby.
Gary bought Thor ten months ago to go with his collection of 31 snakes, six lizards and seven spiders which he keeps at his home in Sinfin, Derby.
Image by: Steve Chatterley
The lorry driver said: "I had reached an agreement with the council to say it's ok to walk as long as he is on a lead, just like a dog.
"I mainly walk him for exercise and fresh air.
"Also I just like to let people see him and maybe experience touching him.
"He can run really quickly and he wouldn't just run in a straight line.
"He'd be all over the place, it would be like trying to catch a chicken.
"He could do a lot of damage, his claws could slice your arm or head open.
"But that would be very out of character.
"Thor has a really cool temperament, he's not aggressive.
"When he's had enough, he'll whip his tail around.
Image by: Steve Chatterley
"Some people get scared and thing all reptiles will do is bite and scratch you.
"But I want to show that is not the case.
"I tend to walk Thor in the summer time and basically when the weather is good.
"He loves the trees and water in the park, he likes to get his claws into the trees.
"He eats braising steak about four times a week, he'll eat rats and fruit.
"He weighs about three stone and is about five foot nine inches tall.
"He's a strong lad.
"He gets more active when his temperature gets warmer, so when it's colder he's not
that active.
"He's friendly and is used to being touched and handled.”
Image by: Steve Chatterley
Great-gran who risked her life for a facelift is so pleased with the results she's saving to go under the knife again
Video by: Paul Davey
A great-gran who risked her life for a facelift is so pleased with the results she's saving to go under the knife again.
Toni Goldenberg became one of the oldest people in the country to have a lower face lift, ridding her of a dreaded 'turkey neck' and making her look years younger.
The 80-year-old said it was like a dream come true when she looked in the mirror for the first time after the her three-and-a-half hour procedure and saw "the old woman had gone."
She began saving her pension five years ago for the £10,000 procedure and has already began putting money away in her giant Coca Cola bottle for an upper face lift.
Toni, from Wallington in south London, said: "I feet absolutely fantastic. It's like a dream come true.
"The old woman has gone and I hope she doesn't come back.
"When I look in the mirror, I thought I looked like a completely different person.
"But now I just see me and I forget what I looked like before.
"My neck and jowls made me look cross and miserable but now I look fresh and happy.
"You could not ask for anything better, especially at my age."
Image by: Paul Davey
Doctors warned Toni could be left partially paralysed or even die from surgery and that the risks of general anaesthetic were much greater at her age.
But she was determined to fulfil her long-held dream and told doctors "at least I would look good in my coffin."
She said: "I was told that I could die or that half of my face could be paralysed but I was willing to take that chance at my age.
"There is no use worrying if you are going to die - you go out onto the street and get run over or die at any moment.
"I understood the risks but I told the doctor 'at least I would look good in my coffin.'"
Toni, who was widowed 46 years ago, underwent extensive tests to evaluate her suitability for surgery and assessed her medical history, general health and level fitness.
She also faced a risk of poor wound healing and even tissue necrosis - where skin cells break down and die.
Toni said: "I was not really that nervous before the operation.
"When they put me on the operating table, I started to think about it all but then the anaesthetist said he was going to give me some drugs.
"I didn't have time to think or worry it and the next thing I remember was waking up in bed after the op.
"Everybody at Harley Street was fantastic, I couldn't recommend them enough."
Image by: Jon Mills
Image by: Jon Mills
Toni went under the knife at the world renowned Harley Street Skin Clinic on February 15.
While she insisted she is "too old for romance" Toni's new fresh look has done wonders for her confidence and she is set to start yoga and gym classes.
She said: "I am too old to get back in the dating game but I would consider going out for a nice meal with somebody and sharing a man's company.
"I feel much more confident and plan to go to the gym every day except for Tuesdays when I look after my great-granddaughter."
Toni, who has two great-grandchildren, saved for the £10,000 op by putting all her loose change in a giant Coca-Cola bottle.
She filled her "face lift fund" with spare pennies from her pension before starting again with pound coins and again with only £5 notes.
Toni is now saving for a £6,000 upper face lift which she expects to have before the age of 85.
She said: "I am already using my Coca Cola bottle - I was saving for some new clothes but I will have to go to the charity shop for them now.
"I look in the mirror now and I see the baggy eyes so I'm saving up again to have the area around my eyes and forehead lifted - that will be another few years.
"My friends said it's the best thing I've ever done and they have already chipped in towards my next face lift."
Six weeks on from surgery, the Harley Street team are impressed by Toni's "extraordinary" and speedy recovery.
Image by: Jon Mills
Image by: Paul Davey
Lesley Reynolds, co-founder of Harley Street Skin Clinic, said: "Toni surprised us all by her swift recovery from the surgery which is a testament to her tremendous energy and force of life.
"Her general health is such that she bounced back very quickly after the operation - her bruising and swelling were minimal.
"This is in part due to the skills of our surgeon Mr Hagen Schumacher and the anaesthetist, but also perhaps down to Toni's general health.
"Usually people of Toni's age have some sort of health issues that would increase the risk of a general anaesthetic to the point of it not being advisable to have cosmetic surgery."
Surgeon Mr Schumacher told Toni that the results will continue to improve over the next year.
Toni said: "After the surgery, I had a bit of swelling for a few days but no pain at all – it was brilliant.
"It will take a year for it to be completely healed so it will just keep getting better.
"The surgeon was really, really good and I would recommend him to anybody."
The great-grandmother began dreaming of having cosmetic surgery in her 20s when she noticed wrinkles appearing on her face.
She has always worked hard to maintain a size ten and had hoped she would take after her mother, who had "barely any wrinkles" before she died aged 84.
But as she grew older, Toni felt her face no longer matched her body.
She said: "I expected my skin would age in the same way as my mum but it didn't.
"I had wanted it done for decades and decades - I would read about it in the papers and I did a lot of research."
She added: "People won't tell you if they've had a face lift - they don't talk about it but I think people should.
"It has made an awful lot of difference to my confidence and I feel a lot better about myself - I don't even wear make up.
"I'm so pleased with it - it looks natural rather than having that drawn, wind-swept look.
"I can't wait to have the area around my eyes and brows lifted to match."
MUM IN A MILLION - Meet the young woman who has become 'mum' to her five siblings at the age of 21 - after they lost their mother to a sudden illness
Image by: Shannon Ellis
Meet the 23-year-old who has become mum to her five siblings as well as her own two kids - after her mother's sudden death.
Shannon Ellis was just 22 when she stepped up to care for the brood of seven after her mum Shelley, 39, died in January this year.
This Mother's Day she received handmade cards, boxes of chocolates and bouquets of flowers from her brother and sister.
The brood will also paid tribute to Shelley by visiting the tree where they spread her ashes near the park she used to take them to.
Shannon - who was already a mum to her own children - Harrison, three, and Rowan, two - was devastated when she lost her mum.
But rather than see her siblings placed in care, Shannon volunteered to raise them as her own, under one roof.
She took them in with her partner, Kieran Ferguson, 23, at their home in Hartlepool, County Durham.
She is the legal guardian for her five siblings - Mia, 16, Neve, 15, Bracken, 13, Keevie, 10, and Blaine, eight.
Shannon, who is a full-time mum, said: "I always wanted to be a mum, but I never imagined I'd have to fill my own mum's shoes and go from a mum-of-two to a mum-of-seven overnight.
"But I promised mum I'd look after my brother and sisters.
"She'd have hated to see them split up or in care, I never would have let that happen.
"We have our moments, but we're still one big, happy family - just as mum wanted.
"Mum was just brilliant.
"She did everything to provide for us - despite being a single parent and raising us all on her own.
"She'd take us on family trips to the seaside and would muck in with us playing games. On a Saturday night she'd always rustle up a huge home-cooked feast.
"We had an amazing childhood and always felt very loved and protected by her.
"She made me want to have children of my own and she was over-the-moon when she became a grandmother to my two little boys."
Shannon was born seven years before her next sibling, so for the first years of her life, she and mum Shelley were inseparable.
“I was her mini-me,” Shannon said. “We would do everything together.
“She was both mum and dad to me as my father wasn't on the scene - but she was also my best friend in the world.
“I remember watching in admiration as she put her make-up on in the mornings and thinking, I want to be just like her when I grow up."
Image by: Shannon Ellis
For many children, the sudden arrival of new siblings after years of undivided attention would cause upset - but not for Shannon.
Sliding with ease into her role as their big sister, she doted on her younger siblings from the very first time she set eyes on them.
“I remember the first time I met Mia and mum said I could give her a kiss,” Shannon said.
“She was sleeping so peacefully and I carefully kissed her tiny face – I was so scared of breaking her, she was perfect.”
As the number of her siblings grew, the Ellis’ became one big happy family.
“We were all really close,” Shannon said.
“We’d have the odd fight as brothers and sisters do, but all-in-all we looked out for each other and mum made sure we were always happy.
“I would help her out where I could - getting my younger brother and sisters ready for school and out the door – mum couldn’t do it all by herself!”
By this time, Shelley was no longer with her partner and the father of the younger children, but the family got on perfectly fine with the help of Shannon.
They enjoyed trips to Headlands Beach or Summer Hill, near their home in Hartlepool, and caring Shelley would make sure the car was packed with everything they would need.
She helped with homework and tucked each one of her six children into bed each night, with more than enough love to spread between them all despite having barely any time for herself.
Keen to start a family of her own, Shannon fell pregnant aged 18 after she and Keiran had been dating for eight months and had two sons - who Shelley doted on.
"I remember taking the pregnancy test at home first thing in the morning before work,” Shannon said.
“I ran screaming and shouting into mum’s room, jumping on her bed and telling her she was going to be a grandma.
“Mum knew before Kieran did – that’s how close we were!
“She was over the moon and although I was nervous about being a young mum, I knew I could do it if I just followed the amazing example my mum had set.”
Harrison, three, was born in May 2015, followed by another grandson for Shelley, Rowan, two, in January 2017.
Shannon and Kieran moved just around the corner after the birth of their two boys to give the family some more space – but that didn’t mean they weren’t together all the time.
Shannon said: "Mum was an amazing grandmother - she absolutely adored the boys.
“Not a day went by where I wouldn’t see my mum.
“She helped look after the boys if we were busy and taught me the tricks of the trade.
“She was besotted with her grandchildren, the same look I’d seen when my siblings were born all those years earlier, and I was so happy to have her help throughout their early years.
"I always thought she'd be there for me to give me guidance and to watch her children and grandchildren grow up."
But the family's lives were turned upside down after Shelley was taken unexpectedly ill in January 2018 - and told she had just days to live.
Shelley was rushed to the University Hospital of North Tees, Hartlepool, where medics discovered she had a rare disease.
Shannon was told by medical staff that her mum Shelley would never be the same, and had a maximum of two years to live.
“I’ll never forget hearing those words,” Shannon said.
“I couldn’t contemplate losing her but the doctors assured that would be the case.”
When Shelley heard she didn’t have long left, she became unbelievably worried about what would happen to her children left behind.
“It was horrible seeing the worry in her face, she loved us all so much,” Shannon said.
“But I promised her that the kids would never be alone and that I would step up to look after them.”
Shelley’s condition deteriorated rapidly, and just two days later they were told the end was imminent.
Shelley was moved to Alice House Hospice, Hartlepool, to make her final days more comfortable, and the family gathered around to make their heart-breaking goodbyes.
“I can’t thank the staff there enough, they were brilliant to poor mum,” Shannon said.
“They were so lovely and understanding and made sure she had everything she could have needed until the time came.”
Image by: Shannon Ellis
On January 25, 2018, Shelley sadly passed away aged 39 - just nine days after she first started to feel unwell.
Shannon was there when she passed, and curled up on the bed next to her beloved mum until she knew the time had come to tell the rest of the family.
“There’s nothing to describe her death other than a feeling of emptiness,” Shannon said.
“My best friend, my biggest support and my incredible mum had been taken from our lives and I felt so empty.
“But I had to be there for the kids, and we sat together sobbing for what seemed like hours.”
Having gone from speaking to her mum every single day, Shannon was left lost without her.
But she found strength in her siblings and the unity of their family.
Shannon - who was the eldest of her siblings - knew she had to keep her final promise to her beloved mum and stepped up to become the legal guardian for her five siblings.
She said: "Losing mum was horrendous - it came so out of the blue. It hit us all so hard.
"One minute she was there and seemed fit and healthy and the next we were told she had days left to live.
"When she passed away, it didn't hit me straight away. I just felt numb.
"But the one thing that kept me going was my brother and sisters and my own boys. I knew I had to get up each day to be there for them and to look after them.
“I couldn’t have done it all without Kieran – he had no experience of looking after girls, let alone teenagers. But he took my siblings under his wing and was a pillar of strength for all of us.
“Mum was always a brilliant judge of character and she adored him, so I’m glad she will have known that he will always look after us.
“I can’t believe how strong my brother and sisters have been.
“To be so young and suffer such a devastating loss is heartbreaking, but to still act as maturely as they have is amazing.
“They are coping really well and I’m really proud.
“We talk about mum all the time and constantly get photos out and laugh about the joy she brought to our family.”
The family all moved in together after the death of their mum, and Shannon and Kieran have taken them on as their own – just as Shelley had wanted.
From being a mum-of-two to a mum-of-seven overnight, Shannon says she has learnt a lot over the past year and says it gets easier every day.
“It has been hard but it’s given me more of a reason to get up and get on with every day normal life. Their strength has given me the strength to carry on,” Shannon said.
“I think she’d be smiling down at us, proud of how we’re doing.
“She will always be the head of this family, and I am trying every day to follow the incredible example of motherhood she set.”
DON'T LOOK DOWN, BOY! - Meet Britain’s paragliding DOG that takes to the skies with his owners
Video by: Joe McCarthy 
Image by: Joe McCarthy
Meet Britain’s paragliding DOG - that regularly takes to the skies with its owners.
Henry the three-year-old cockapoo has flown more than 20 times over the hills of west Wales - and even in the Alps.
Owners Amy Jones, 38, partner Joe McCarthy, and Amy's dad Rob, 67, leap off mountains and hills with the dog strapped on their laps.
Weather conditions must perfect to paraglide - and Henry flew this weekend as it was dry with low winds.
Video footage shows Henry looking relaxed as he flies with Rob, 67, over hills near his home in Tywyn, west Wales.
The pooch also enjoyed a bird’s eye view of his favourite beach on Boxing Day as he swept along the Dyfi Estuary.
He started high on the hills above Aberdyfi before paragliding down to the seafront - enjoying panoramic views across the stunning landscape.
He hops up onto the pilot's knee and is “ready to go as soon as he gets his harness on”.
Image by: Joe McCarthy
Image by: Joe McCarthy
Amy, who runs a roofing firm with dad Rob, said: “Henry is hilarious - his expressions are very funny because he is always so happy.
“We go over to the Alps every year in a VW campervan and Henry comes with us and flies.
“As soon as he gets his harness on to paraglide you can tell he wants to go - as soon as it is on he’s ready.
“But Joe and I are very active and he does everything with us.
“We take him to Lake Annecy where he flies, swims and cycles in the trailer - it’s great.
“Passersby expect it to be a kid in the back but then they see his little head. People think we are bonkers but it’s so funny.”
The little dog also paddleboards with Amy, travels in a trailer with her on long bike rides and enjoys long walks up Cadair Idris mountain in the snow.
Henry’s love for the outdoors is a trait mirrored by Amy and Joe who met three years ago when he was a puppy.
He often flies with Amy’s dad, Rob, who has over 30 years of paragliding experience and was one of the sport's pioneers.
Amy says playful Henry is small and will often disappear into the snow during walks on Cadair Idris. She added that Henry has flown “20 to 30 times” in total.
Partner Joe, a commercial photographer and videographer, described Henry as “so calm” as he flies.
Henry spends his time at home in Bryncrug, Gwynned, Wales napping and eating so he is ready to go outdoors.
Joe, who met Amy in a paragliding class, added: “Cockapoos are really lovely natured, gentle and caring dogs.
“He doesn’t shed so is a brilliant house dog but loves to go out. When I’m working he will nap, then he eats and is ready to go out again.”
Image by: Joe McCarthy
A woman describes horrific story after her hand was bitten off by rescue dog
Video by: Tom Maddick SWNS 
Image by: Tom Maddick SWNS
A woman yesterday told how she had her hand bitten off by a huge rescue dog which savaged her in attack which 'seemed to last for hours.'
Sue Scarlett, 64, was savaged by the 90kg - 14 stone - cross-bred beast while cleaning its kennel and looked down to the ground see her 'right hand on the floor.'
The care home nurse was set up by the dog last October when the animal locked its teeth around her right arm.
Despite two people trying to get the dog off her hand, the male dog gripped on to her wrist with his teeth and wouldn't let go.
The grandmother, who described the dog having a grey and black brindle coat with paws the size of her hand, said: "I shouted to him to let go but he just held on tighter.
"After what seemed like hours my husband heard me and tried to pull the dog away but was unable to do so.
"I remember thinking that I would have a few broken bones when he finished.
"But at that time I looked down and saw my right hand lying on the concrete in a pool of blood."
The kennels which had a run outside where caged - the dogs slept in the kennels and were able to have water in the run before running outside into a surrounding field to play.
As Sue let the dog out of the kennels to go into the field to clean the room and change the water in the run.
But the dog put his head partially into the run of out of the kennel and grabbed her right arm.
Sue, who is a nurse at Ashlynn Grange care home, in Peterborough, Cambs., shouted at the dog to let go but he continued to "gnaw" at her arm.
She said she had to go on her knees to push the kennel gate against him because she "knew that if he got into the kennel he would kill" her.
Sue screamed for her husband, who was also helping to look after the other dogs, to call for an ambulance and police as her friend tried to get the dog off her arm.
After a couple of minutes, the dog eventually let go in which they were able to isolate him back into the kennel.
She added: "As I looked up I saw him looking at me and there was blood all round his mouth.
"As a nurse I knew that I was in big trouble so told my husband that he needed to put a tourniquet - compressing device - above the wound, which he did using his jacket.
"My friend and my husband held my arm in the air to try and prevent more blood loss and continued to do so until a paramedic took over."
The East Anglian Air Ambulance arrived at the scene a long with two doctors, a paramedic and police.
Sue said: "I don't remember much else about the journey or going into the hospital or the emergency surgery which was needed to save my life.
"But what I know is that without a shadow of a doubt is that without the swift action and interventions of the East Anglian Air Ambulance crew I would not be here today.
"I might have lost part of my arm but I am alive and will always be grateful to the crew".
The dog was put down after the attack.
Since the attack Sue as thanked East Anglian Air Ambulance service after their life saving efforts.
An East Anglian Air Ambulance spokesperson said: "The Anglia Two team of Doctor Pam Chrispin, Doctor Antonia Hazlerigg, CCP Mark Milsom and Pilots Rosh Jaypalan and Martin Polding were tasked at 12:24 and arrived on scene in Wisbech at 12:46.
"The clinical team provided IV Access and haemorrhage control, dressing and splintage to Sue’s arm.
"They administered pain relief and antibiotics at scene before packaging Sue and flying her to Addenbrooke’s Hospital, arriving at 13:39."
Sue is now volunteering to help raise funds "that are needed to keep these heroes and horoines in the air" for East Anglian Air Ambulance, which is not government funded.
She will be taking part in the Big Leeap, the tandem skydiving event in May.
Sue was forced to give up for the last six months while recovering from her injuries.
Hilarious moment a three-year-old girl gave her baby brother a TOWIE-style makeover with cosmetics - to 'look just like you mummy'
Video by: Catherine Carr 
Image by: Catherine Carr
A three-year-old gave her baby brother this hilarious TOWIE-style makeover with cosmetics - to 'look just like you mummy'.
Mum Catherine Carr, 24, thought she'd grab a quiet moment to sort some washing and left daughter Tiffany downstairs watching TV with snoozing sibling Frankie.
But Tiffany then decided to use her mum's make-up to paint her bro's face - leaving him a deep brown colour.
The younger used a brush to cover him with bronzer, gave him red lips with lipstick and drew on eyebrows with eyebrow pencil.
Her mother came down to find Frankie fully made-up - and was even more gutted when Tiffany explained she wanted him 'to look like you mummy'.
Catherine, of Harrogate, Yorkshire, said: “I left him fast asleep and she was sat quietly watching her tablet.
“It was all so nicely peaceful until Tiff shouted 'mummy come downstairs – I made Frankie look like you'.
“She'd basically piled as much as bronzer onto his face as possible and covered him in highlighter cream.
Image by: Dan Rowlands SWNS
Image by: Dan Rowlands SWNS
“She'd also put my lipstick on him and done quite a good job drawing on his eyebrows with my eyebrow pencil.
“She seemed to think he looked exactly like me – I couldn't see it to be honest.”
But far from getting a telling-off, Tiffany's make-up job had her mum in stitches.
“I was mortified, but I couldn't tell her off – it was just too funny,” Catherine explained.
“Some would have told her off, but she's always doing hilarious things like this, she's a little legend.”
And she said Frankie seemed perfectly happy with his makeover as well.
She said: “He loved his new look. He was fast asleep when I left him but I came downstairs and he was sat on the floor smiling his head off.
“He looked like a doll, she'd put that much make-up on him.”
Catherine shared snaps of Frankie and his sister on a Facebook parenting group, with thousands of mums and dads liking it in just hours.
She wrote: “I don't know what's worse, the fact she she thinks I look like that or the fact that she's done his eyebrows quite good.”
Image by: Dan Rowlands SWNS
